Community Partnerships: Macular Society
The Macular Society is the charity determined to beat the fear and isolation of macular disease with world-class research, and the best advice and support. We went along to speak to group members about their health and social care experiences.
In West Sussex, the Macular Society runs 11 macular support groups to help increase the confidence and independence of people affected by macular disease across the region. Organised by the Society in partnership with local people, the groups offer information, encouragement and friendship to people with macular conditions, their friends and families.
The key topics people chose to speak to Healthwatch about were:
- Difficulties in accessing own GP appointments
- Unclear communication and lack of communication between health care professionals
- Loss of local and hospital transport and problems this is causing
- Cost of NHS medication for eye conditions.
The insight from each person was collated and anonymised and forms part of the insight and evidence that Healthwatch gather to identify common themes around what works and doesn’t work for local people.
Downloads
Spotlight on the Macular Society
If you are setting up or would like to share news of a similar project we would
be interested to hear from you. Please contact Cheryl Berry, Community
Partnership Co-ordinator
